Useful Information

Here are some frequently asked questions and useful information on babies born small.

Q&A

The baby’s medical care is covered by the Medical Subsidy for Children program. The maximum age of the child may vary depending on the municipality, but this is applicable from the day the child is born in any area, so it is okay to expect that no medical expenses will be incurred even if the baby is hospitalized and/or receive medical care immediately after birth. However, parents are responsible for the costs of disposable diapers, artificial milk, swaddle blanket (clothes), and other items that will also be used at home. In addition, if your baby are transferred to another hospital using an ambulance or private ambulance of a certain hospital, you may be charged a transportation fee for the vehicle determined by each medical institution or private company. In addition, an actual cost set by each hospital is required for the test to detect a hearing impairment called Automatic Auditory Brainstem Response (AABR, screening test for congenital hearing loss) at an early stage.

For underweight babies weighing 2,000 g or less, babies judged to be physically premature, and babies who require surgery, there are public services such as "Financial and medical support for premature babies" and "Financial and medical services for self-reliance (for persons under 18 years with disabilities)". If your child is admitted to the NICU/GCU, check with your doctor to make sure your child is eligible.

Starting in 2017, the "Child-rearing Generation Comprehensive Support Center", is being established as an institution to provide support to all children and their families. The purpose of this institution is to provide continuous support throughout pregnancy to child-rearing, and public health nurses will be assigned to provide consultation for pregnant women. It is stipulated that this institution will formulate supporting measures, provide necessary information, and coordinate with relevant organizations, in order to provide comprehensive support including "Maternal and child health service" such as health checks and "Child-rearing support service" such as local child-rearing support institutions. This institution is scheduled to be established in all municipalities by the end of 2020. For more information please visit the municipal office in your area of residence.

Basically, it is good to adjust to "a temperature at which adults do not feel cold or hot, or a temperature at which adults feel comfortable in". Most of the time adults are standing or sitting, but babies often sleep and spend time lying down so they will be closer to the temperature of the floor. You may remember learning from the laws of physics that "warm air goes up," and floors tend to get cooler than what we adults feel. Therefore, if your baby spends most of his/her time close to the floor (if you do not use a crib, etc.), you need to be careful to check if it is not too cold. If it feels a little chilly, try dressing the baby with a slightly thicker underwear. If it is too hot, you need to consider dressing the baby with light clothing, lowering the room temperature to a level that adults feel comfortable in, and keeping the baby well hydrated.

Under the law, infants who are older than 18 months but younger than 24 months are eligible for a health checkup for 18-month-old infants, and children who are older than three years but younger than four years are eligible for a health checkup for three-year-old infants. The health checkup period has a range so it is possible for infants to have local health checkups (infant health examination) at their corrected ages.
In addition, many local governments provide health checks for infants at the ages of three to four months. These checkups can also be taken at corrected ages.
Notifications about health checkups are sent according to the date of birth. However, this date can be based on a corrected age at a family's discretion. If you wish to have a health checkup for your baby according to a corrected age, contact your local health center by not later than the scheduled date of a health checkup.

Basically, it's best to consult with your pediatrician. Have the doctor decide if you should go to the hospital or not. However, if the attending doctor gave you instructions when your baby was discharged from the NICU/GCU, please follow those instructions.

In Japan, licensed doctors can go into practice in any clinical departments other than anesthesiology and dentistry. For that reason, physicians who have rarely been engaged in medical practice for children until they go into practice sometimes call their clinics "XX Internal Medicine and Children's Clinic" or similar. You can rest easy knowing that the primary care doctor for your baby after being discharged from the NICU is a physician qualified as a specialist in pediatrics. Many clinics of pediatrics specialists are called "xxx Kodomo Clinic", "xxx Kids Clinic", "xxx Pediatrics and Internal Medicine Clinic", etc. You can search for pediatricians on the Japan Pediatric Society website. Please refer to:

https://www.jpeds.or.jp/modules/senmoni/

You will be directed to an external website.

Checking whether a primary care doctor's office or clinic is easily accessible from your home or childcare center, and whether the clinic’s hours fit in with your family’s routines may also be keys to selecting a primary care doctor.
Additionally, it is a good idea to find out what areas the pediatrician specializes in (each has their own area of specialty within pediatrics, such as neonatal care, allergies, heart disease, neurology/epilepsy, and developmental disorders). This will increase the likelihood that your questions will be answered more quickly and accurately when you discuss your child.

Commonly, a baby will be able to hold his/her head up at about 3 to 4 months after the expected date of birth. For children under the age of 3, development of their motor function will be evaluated according to their corrected age. Being able to hold their head up, is a development in motor function so it is adequate to evaluate based on their expected date of birth. However, for very low birth weight infants born under 1,000 g, it may take about 6 months for them to be able to hold their heads up, so the doctor will evaluate in combination with other general conditions.

In Japan, it is appropriate to start introducing solid food for full-term infants (babies born between 37 weeks 0 days and 41 weeks 6 days) around 5 to 6 months after birth, and even for babies born early, the corrected age of 5 to 6 months will be a good time to start introducing solid food. Sometimes, the baby will let you know when to start the introduction of solid food. That is when the baby reacts by staring at what the adults are eating, muffles their mouth, or drools. These are signs showing that their body is ready to take in solid food. Also, if the baby stops to push out the spoon put into their mouth using their tongue, it may be time to start introducing solid food as well.

However, the smaller the baby’s birth weight, the slower the development of feeding behavior tends to be, and even when looking at their corrected age, they may start 1 to 2 months late.

Your baby is not eating any solid food... That must make you very worried.

For babies born small, development in their feeding ability will also differ from the average. Especially for very low birth weight infants born under 1,500 g, it is necessary to consider comprehensively, their motor function, developmental status, and development of their feeding ability. It is said that the smaller the birth weight of the baby, the slower the development of feeding ability will be. Especially the timing for beginning solid food and shifting to 2 meals a day for very low birth weight infants born under 1,000 g will be 1 to 2 months later, even by corrected age. Therefore, it is important to confirm the developmental stage of each baby and proceed individually and closely.

Eating solid food is the first step towards adult food. It would be nice to give your baby an opportunity to experience eating as an enrichment of life, rather than experiencing it as having to eat when they’re not ready or against their will.

It is necessary to consider in order, the development of the baby’s motor functions from before he/she can sit down. For example, babies that cannot hold their head up or does not have a firm waist cannot suddenly sit down, so the examination will be made by evaluating the level of development in their motor function that has already been acquired. Generally, babies will be able to roll over 1 to 2 months after they hold their head up (5 months in corrected age). Also, 2 to 3 months after they hold their head up, they will be able to sit down by supporting themselves with their hands (7 months in corrected age). Then, 2 to 3 months after they sit by supporting themselves with their hands, they will be able to sit on their own with both of their hands free (9 months in corrected age).

As explained above, development of their motor function will be acquired through appropriate sensory stimuli. It is very important not to leave the baby alone and repeat playing with him/her so the baby can move their body to stimulate their senses.

Babies born under 1,500 g (extremely/very low birth weight babies) are smaller and thinner than full-term-born babies of the same age (babies born between 37 weeks 0 days to 41 weeks 6 days), and they tend to be shorter as well. However, by the time these children reach the age of 2 to 3, their growth will improve and will catch up with the other children.

On the other hand, there are those who cannot catch up and if you do not help them in any way, they may end up short in stature. If the child over the age of 3 and still has a short stature, the child may require examination or treatment for short stature, so please consult with your doctor.

The level of language development can be considered around the age of 1 to 3. However, language development is very different in each child and there are children who can speak well at the age of 1 and a half, to children who did not speak at all until they were 3 years old but suddenly starts to talk when they turn 3. It is also important to consider that hearing loss may be hidden if the baby is not reacting to voices and sounds that the adults are making.

If the baby is not using any meaningful words (such as "doggy", "car", or "mama") when they are 1 and a half to 2 years old, or if they turn 3 and is not speaking any short phrases with more than 2 words (such as "I like doggy" or "mommy hold me") the doctor will examine them very carefully. When a doctor suspects delay of speech in a child, the doctor examines the following problems: (1) cannot vocalize, (2) cannot understand the meaning, or (3) cannot communicate. Therefore, please describe to your doctor, about the specific conversations at home.

Children's motor skills evolve as a result of having interest to the surrounding environment and exploring or questioning them. Playground equipment at places like parks are very colorful because they are designed to attract the interest of children and make them enjoyable, so they can comfortably exercise their whole body without thought. Indoor activities like "riding on the back like a horse" or outdoor activities like "riding on the shoulders"are effective for strengthening the child’s body core and balance. Children are able to gradually improve their muscle strength and endurance by repeating daily activities using their entire body.

However, if the child is leaning when walking, have noticeable dragging movements, or are prone to tripping or falling on flat grounds, consult your doctor as soon as possible.

Babies discharged from an NICU or GCU have their development checked on at a follow-up outpatient clinic for several years as necessary. We recommend that you consult your outpatient physician regarding your concerns about your family. However, if your family members feel anxious and do not want to wait until the next follow-up outpatient visit, it is important that you consult your primary care physician or health nurse at your local health center at an early stage.
There are three approaches to deal with slow development of a child: 1) medical approach (diagnosis of causes, handling, and rehabilitation), 2) welfare administration approach (regional education assistance and Kotoba no kyoshitsu (speech impediment classes)), 3) education approach (provision of education based on the degree of delay in the development of individual child, assignment of staff at kindergartens, nurseries, childcare centers, and schools). All of these viewpoints are important. Professionals who specialize in monitoring the growth of babies and children examine what they can offer now and what needs to be done from now on from each viewpoint, and present them to families. Please be sure to consult them.

I feel a lump in my breast while breastfeeding and sometimes it feels painful. This is a condition in which mammary glands are filled with milk. Try softly applying a compress to the affected area while breastfeeding until no more milk comes out of your breasts. This should relieve the pain.
If you try to endure the pain, it will not get any better, and you may see a decrease in the amount of breast milk you produce. In addition, if a lump in your breast leads to inflammation, you may experience a painful influenza-like condition, for example, you may develop a fever, fatigue, or pain. (Mastitis) In these cases, use a medication that eases pain and fever, and let your baby completely empty your breasts of milk. There is a drug that is safe to use while breastfeeding.
In any case, we advise you to talk to an obstetrician or midwife at an early stage about discomfort in breasts during breastfeeding.

If your previous child was hospitalized in the NICU due to premature birth or low birth weight, some people may worry the same will happen to your next child. Depending on the cause of the baby being born small and premature (for example, if the mother had to give birth early due to hypertensive disorders of pregnancy), the next child may be born prematurely or underweight for the same reason.

For those who are thinking of becoming pregnant or will be visiting the obstetrics and gynecology unit in the early stages of pregnancy, doctors will also check the progress of the previous pregnancy, so please check with your doctor, the precautions of everyday life to prevent premature birth. Also, consult your obstetrician/gynecologist about the intervals you should have before your next childbirth.

Useful links

Linked to external website

Japan Multiple Birth Association

An organization that supports "safety" for pregnancy, birth, and childcare of multiple babies by providing information on multiple births such as twins and triplets.

Bebeano

A home-visit nursing station specializing in infants. We will nurture a fun and warm life for your child and family together.

Sousourire

We sell cute items for babies born small and children who need medical care.

Chochi Chochi baby Shoes

An on-line shopping site selling small baby shoes with good foot-rearing quality, which was made based on actual child-rearing experience of the creator. Please try our leather shoes made in Japan.

solaputi kids' camp

We run camp site for the children who need medical care with the leadership of pediatricians & nurses in the great nature in Hokkaido.

Parents and Community Network

Linked to external website

Japanese Organization for NICU Families

A nationwide network that connects newborns admitted to NICU and their families. We are introducing information about family associations nationwide. We are working on solving medical and social support issues.

Ganbarikko Nakama

A community for the parents of premature babies, children with sickness, children with disabilities and their support team. We support mothers and fathers all over Japan who "want to meet" and "want to know".

Twin Mothers Club

A national organization of volunteers for supporting child care of multiple birth babies.
Newsletters, lectures, gatherings, as well as telephone consultations are provided here.